Spanish Version of the Diabetes-Specific Self-Compassion Scale for Parents of Youth with Type 1 Diabetes: Translation and Adaptation for Puerto Rico
DOI:
https://doi.org/10.37226/rcp.v9i1.9207Keywords:
self-compassion, type 1 diabetes, caregivers, adolescents, SCS-Dp-PRAbstract
From 2004 to 2017, diabetes was the third leading cause of death in Puerto Rico, with 3,263 reported cases. In 2019, the number of children and adolescents diagnosed with type 1 diabetes increased to 244,000. During these developmental stages, the role of caregivers is crucial in the proper management of the condition, including treatment adherence and retention. It is not surprising that this responsibility generates feelings of frustration, anguish, guilt, and low self-efficacy among caregivers, which may result in poor glycemic control in adolescents. However, research has found that self-compassion in caregivers of adolescents with type 1 diabetes can act as a buffering factor and contribute to successful disease management. For this reason, this study translated and adapted the SCS-Dp scale using the back-translation method. This process led to a version with culturally responsive terms while preserving the constructs it measures (self-compassion and judgments). The SCS-Dp-PR is a useful resource for specialists treating type 1 diabetes, as it allows them to understand how these verbalizations can impact disease management both positively and negatively. In addition, this study enhances the visibility of caregivers of adolescents with type 1 diabetes and opens the door to future studies and public policies that benefit this group.
References
American Diabetes Association. (2016). Children and adolescents. Diabetes Cates, S86-S93. https://care.diabetesjournals.org/content/39/Supplement_1/S86 DOI: https://doi.org/10.2337/dc16-S014
Anderson, B.J. (2004). Family conflict and diabetes management in youth: Clinical lessons from child development and diabe-tes research. Diabetes Spectrum, 17(1) 22-26. https://doi.org/10.2337/diaspect.17.1.22 DOI: https://doi.org/10.2337/diaspect.17.1.22
Bialo, S. R. (2018). Diabetes tipo 1: ¿Qué es? KidsHealth. https://kidshealth.org/es/parents/type1.html#catendocrine
Centros para el Control y la Prevención de Enfermedades (CDC). (2022). ¿Quién está en riesgo? https://www.cdc.gov/diabetes/spanish/basics/riskfactors.html#:~:text=Edad%3A%20La%20diabetes%20tipo%201,adolescentes%20o%20los%20adultos%20j%C3%B3venes
Centros para el Control y la Prevención de Enfermedades (CDC). (2022). Prevalence of diagnosed diabetes. https://www.cdc.gov/diabetes/data/statistics-report/diagnosed-diabetes.html
Cumba-Avilés, E., & Sáez-Santiago, E. (2016). Research program on type 1 diabetes and youth depression in Puerto Ri-co. Revista Puertorriqueña de Psicología, 27(1), 44–60.
Departamento de Salud de Puerto Rico. (2016). Informe de enfermedades crónicas: Puerto Rico 2016-2017. https://www.salud.gov.pr/CMS/DOWNLOAD/5533diabetes/symptoms-causes/syc-20353011
Ferrari, M., Dal Cin, M., & Steele, M. (2017). Self-compassion is associated with optimum self-care behaviour, medical out-comes and psychological well-being in a cross-sectional sam-ple of adults with diabetes. Diabetic Medicine, 34(11), 1546-1553. https://doi.org/10.1111/dme.13451 DOI: https://doi.org/10.1111/dme.13451
Friis, A. M., Johnson, M. H., Cutfield, R. G., & Consedine, N. S. (2015). Does kindness matter? Self-compassion buffers the negative impact of diabetes-distress on HbA1c. Diabetic Medicine, 32(12), 1634-1640. https://doi.org/10.1111/dme.12774 DOI: https://doi.org/10.1111/dme.12774
Fundación Pediátrica de Diabetes. (2020). Guía educative sobre el manejo de la diabetes tipo 1 en niños y jóvenes. http://fundacionpediatricadiabetes.org/pdf/Guia%20educativa%20padres%202020.pdf
Gandhi, K., K Vu, B., Eshtehardi, S. S., Wasserman, R. M., & Hilli-ar, M. E. (2015). Adherence in adolescents with type 1 diabe-tes: Strategies and considerations for assessment in research and practice. Diabetes Manag (Lond), 5(6), 485-498. https://doi.org/10.2217/dmt.15.41 DOI: https://doi.org/10.2217/dmt.15.41
Goethals, E. R., Oris, L., Soenens, B., Berg, C.A., Prikken, S., Van Broeck, N., Weets, I., Casteels, K., & Luyckx, K. (2017). Par-enting and treatment adherence in type 1 diabetes through-out adolescence and emerging adulthood. Journal of Pediatric Psychology, 42(9), 922-932. https://doi.org/10.1093/jpepsy/jsx053 DOI: https://doi.org/10.1093/jpepsy/jsx053
Gouveia, M. J., Canavarro, M. C., & Moreira, H. (2018). Is mind-ful parenting associated with adolescents’ emotional eating? The mediating role of adolescents’ self-compassion and body shame. Frontiers in Psychology, 9, 1-15. https://doi.org/10.3389/fpsyg.2018.02004 DOI: https://doi.org/10.3389/fpsyg.2018.02004
Harkness, J., & Schoua-Glusberg, A. (1998). Questionnaires in translation. Social Science Open Access Repository. https://www.ssoar.info/ssoar/handle/document/49733
Hood, K. K., Butler, D. A., Anderson, B. J., & Laffel, L. M. B. (2007). Updated and revised diabetes family conflict scale. Diabetes Care, 30(7), 1764-1769. https://doi.org/10.2337/dc06-2358 DOI: https://doi.org/10.2337/dc06-2358
Jackson, K. (2018). Exploring the role of self-compassion in adoles-cent wellbeing and type 1 diabetes management [Doctoral Dissertation, University of East Anglia]. CORE. https://core.ac.uk/download/pdf/196593572.pdf
Mayo Clinic. (2021). Diabetes tipo 1. https://www.mayoclinic.org/es-es/diseases-condi-tions/type1diabetes/symtomscses/syc20353011#:~:text=Aunque%20la%20diabetes%20tipo%201,entre%2010%20y%2014%20a%C3%B1os
Mayo Clinic. (2023). Diabetes tipo 1 en niños. https://www.mayoclinic.org/es/diseases-conditions/type-1-diabetes-in-children/symptoms-causes/syc-20355306
MedlinePlus. (2020). Diabetes. https://medlineplus.gov/spanish/ency/article/001214.htm
Reid, A. M., Balkhi, A. M., St. Amant, J., McNamara, J. P. H., Silverstein, J. H., Navia, L., & Geffken, G. (2013). Relations between quality of life, family factors, adherence, and glyce-mic control in pediatric patients with type 1 diabetes melli-tus. Children's Health Care, 42(4), 295–310. https://doi.org/10.1080/02739615.2013.842455 DOI: https://doi.org/10.1080/02739615.2013.842455
Ruiz-Serrano, K, Felici, M., Díaz-García, R.M., & Cases, A. (2019). Informe de enfermedades crónicas, 2016-2017. División de Prevención y Control de Enfermedades Crónicas, Secretaría de Promoción para la Salud del Departamento de Salud de Puerto Rico. https://www.salud.pr.gov/CMS/DOWNLOAD/5533
Streisand, R., Swift, E., Wickmark, T., Chen, R., & Holmes, C. S. (2005). Pediatric parenting stress among parents of children with type 1 diabetes: the role of self- efficacy, responsibility, and fear. Journal of Pediatric Psychology, 30(6), 513-521. https://doi.org/10.1093/jpepsy/jsi076 DOI: https://doi.org/10.1093/jpepsy/jsi076
Tanenbaum, M. L., Adams, R. N., Wong, J. J., & Hood, K. K. (2020). Diabetes-specific self-compassion: A new measure for parents of youth with type 1 diabetes. Journal of Pediatric Psychology, 45(5), 488-497. https://doi.org/10.1093/jpepsy/jsaa011 DOI: https://doi.org/10.1093/jpepsy/jsaa011
Valenzuela, J. M., Fernandez, M. C., Hsin, O., Harris, M. A., Tay-lor, C., La Greca, A. M., & Delamater, A. M. (2010). Psycho-metric findings for a Spanish translation of the diabetes self-management profile (DSMP-Parent-Sp). Diabetes Care, 33(1), 3-8. https://doi.org/10.2337/dc09-0845 DOI: https://doi.org/10.2337/dc09-0845
Vázquez Colón, N., Disdier, O., Maldonado Reyes, B., Benítez Hilera, M., & Ruiz Montilla, M. (s.f.). Diabetes tipo 1. https://estadisticas.pr/en/diabetes-tipo-1
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